Tag Archives: disabled

Joseph Kamara – Sierra Leone – abilities not disability

14 Dec

WESOFOD is a Sierra Leonean NGO run by and for people with disabilities. It is an organization that Children in Crisis is proud to count as a local partner. This blog was written by Joseph Kamara, WESOFOD’s Founder and Director, for Children in Crisis’ supporters – to mark the International Day of Persons with Disabilities and to give voice to people with disabilities in rural Sierra Leone. Voices which are being listened to more and more thanks to Joseph and WESOFOD.

The international day of persons with disabilities is a very important day for people with disabilities around the world. For us in Kambia, Sierra Leone, it’s an opportunity to reflect on the year and meet with communities to remind them of their duties and responsibilities in making the world inclusive for ALL abilities.

This year, WESOFOD decided to go farther into one of the hardest-to-reach communities, Bramaia Chiefdom, to raise awareness of the gains to be made from the integration of persons with disabilities in every aspect of political, social, economic and cultural life.

T-shirts ready for the day

T-shirts ready for the day

To make this day a success, people with disabilities from all walks of life came from across Kambia district and all over Bramaia chiefdom to its main town of Kukuna. For the first time in the history of Bramaia chiefdom, people with disabilities, as well as their parents, well-wishers and chiefdom leaders filled the major street of their town, singing and dancing and marching to their village hall. Almost the entire township joined the march. They marched with us all the way into the village hall to hear what we had to say. People with disabilities held placards with various messages and during the meeting, described with passion what each of their placards meant. This was what some of them said:

Focus on my ability and not my disability. In his local language and with almost tears in his eyes he said: ‘you always look at our blind eyes, our small limbs, our arched backs, our speech impairment, our disabilities; you deny us opportunities, education, jobs, the right to talk in meetings all because of  our disability. Today I want to say it here loud and clear- we have more abilities than the disability’’.

Focus on my mbility and not my disability

Focus on my ability and not my disability

By promoting Empowerment, real opportunities for people are created. ‘When people are empowered they are better prepared to take advantage of opportunities, they become agents of change and can more readily embrace their civic responsibilities’. ‘Give us education, give us skill so we will be able to look after ourselves, our families and give up street begging’.

Why provoke me? In her presentation, she asked this question three times and concluded, ‘it could be you, you and you’.This question made the entire hall silent. The majority of those present were guilty of this. Provocation is a challenge for many people with disabilities across Kambia district. A lot needs to be done to address the situation.

It could be you, you and you

It could be you, you and you

‘It could be you, you and you’ was a strong message from this child. He was very loud and brief; ‘disability was never a choice for me and I am sure it will never be a choice for anyone of you, it will come when it will come’. ‘Why not join WESOFOD in making Kambia district inclusive for all abilities’?

In the past, it has always been a challenge to bring stakeholders to a meeting that has to do with disability issues. In Bramaia it was a different case. Was it because they wanted to see for the first time people with disabilities singing and dancing? For some people, yes, but for majority, no. By the end of the day I realised why there was such a huge turnout. I saw sincerity in their statements. They were touched by our presentations and especially the presentations from the children. They know these issues were real in their communities and they wanted to do something to help and to support WESOFOD to address disability issues in their chiefdom and the district as a whole. Every section in the chiefdom pledged to donate a piece of land to be developed to empower people with disabilities in their communities.

In his statement, the paramount chief representative assured WESOFOD that they will do all in their powers to make sure that all new public structures are made accessible to people with disabilities in their chiefdom. ‘We are sorry we do not have the resources to make our present schools and public places accessible to people with disabilities but we give all the support within our reach to help WESOFOD correct these past wrongs’.

Magbema Chiefdom's football team

Magbema Chiefdom’s football team

The social inclusion evening also made the day a memorable one. This included a football match between persons with disabilities in Magbema chiefdom and Bramaia chiefdom and a dusk to dawn dance. For the first time in the history of Bramaia chiefdom people with disabilities were seen in the field of play.

For me, the day was a huge success. People with disabilities came out in their numbers. Thirty three children and fifty nine youngsters/adults were registered and have joined the WESOFOD membership. People with disabilities in Bramaia chiefdom saw successful and authoritative colleagues with disabilities from their own district sitting at the high table together with their local authorities, telling them to open their eyes and see ability in disability and appealing to them to make space for the inclusion of persons with disabilities in Bramaia chiefdom, Kambia district and Sierra Leone.

Children with disabilities in Bramaia chiefdom for the first time saw more fortunate children with disabilities, who had the opportunity to be cared for by WESOFOD, role-playing the challenges faced in getting an education; the attitude of parents of children with disabilities and communities towards children with disabilities in their own homes and communities. They are happy that WESOFOD has come to their chiefdom and this gives them hope for a better future. Above all, they are very hopeful that these pieces of land that their stakeholders have pledged to give to WESOFOD will in future be developed to better their lives and their communities. Lastly, after almost a year and half of the Ebola crisis, we were able to come out, we were seen and heard, we were able to tell the people of Bramaia chiefdom-one of the hardest to reach and remotest communities of Kambia district – that Inclusion Matters, and that Access and Empowerment are key to inclusion.

WESOFOD staff and members

WESOFOD staff and members

As I reflect on the 2015 theme of the IDPWDs- ‘Inclusion Matters: Access and Empowerment of people of all abilities. Let us as a section, chiefdom, a district, a country and the world at large reflect on these questions: ‘How many of our offices are accessible to people with disabilities? How many of our health centres are accessible to people with disabilities especially women and children? How many of our schools are accessible to children with disabilities? How many of our mosques and churches are accessible to people with disabilities? How much have we invested in making sure children with disabilities are in school? How much have you invested in women with disabilities to eliminate all forms of abuse and discriminate against them? How much have we contributed to making our communities, our district, our country and our world inclusive for all abilities? How much have we contributed to the empowerment of people with disabilities?’

Written by Joseph Alieu Kamara -Founder and Director -WESOFOD

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Laura Colgan – Sierra Leone – Mr Kamara

3 Dec

When we asked what they wanted to be when they grow up, some said Minister for Education, some said Minister for Disabilities, several said President, and many said that they wanted to grow up to be just like Mr Kamara.

On my recent and very first trip to Children in Crisis’ projects in Kambia, Sierra Leone, I was fortunate enough to spend time with Joseph Kamara, the founder of our local partner organisation WESOFOD. I accompanied Joseph on his visits to some of the communities that Children in Crisis and WESOFOD work in. There, we met some of the children we have supported, as well as those who still need support.

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Joseph Kamara, the founder of Children in Crisis’ partner organisation WESOFOD – a local NGO run by people with disabilities who advocate for the rights of the disabled and directly support children with disabilities.

Despite the lack of knowledge and understanding around disabilities in Kambia, it was incredible to see such a positive and welcoming reaction to Joseph’s arrival within these communities. For the children we met – many of them confined to their homes because the world beyond their (often high and challenging) doorstep is not adapted to their needs – I thought that it must be rare for them to see a person with disabilities being regarded in such high esteem.

It was at these moments that I felt truly proud to work for an organisation like Children in Crisis, that puts such great emphasis on working with local partners – and WESOFOD is a pretty special example of this. Joseph himself is living proof that people with disabilities in Sierra Leone CAN succeed and be a beacon for their communities, and he represents everything that WESOFOD is, with absolute determination and pride.

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Some of the children who are cared for by WESOFOD

When we spoke to the children who were soon to move into a new home and treatment centre, many told us about the multitudinous challenges faced by people with disabilities in Kambia, but that Joseph had given them hope. When we asked what they wanted to be when they grow up, some said Minister for Education, some said Minister for Disabilities, several said President, and many said that they wanted to grow up to be just like Mr Kamara.

Since returning to London, I am constantly reminded of my time with WESOFOD. When a London bus driver moves closer to the curb to allow a wheelchair user to disembark using the built-in ramp (there are many wonderful things about that sentence) I am immediately transported back to the remote communities of Kambia.

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Children with disabilities in rural Kambia are often confined to their homes, unable to travel on unpaved roads

I have become infinitely more aware of my surroundings in so many ways. I have realised that every inch of the land around me is produced, reinforced, maintained, and adapted so that it is that much more accessible (though certainly far from perfect). I was born into this world. I did not earn it or contribute to it, I am simply lucky. I have a whole new appreciation for my own mobility, and how something as seemingly simple as a flat pavement can mean a child’s safe route to school.

I think of Joseph often, and always with a smile. It is astounding how one man’s determination can bring so much hope, strength and ambition to so many others. Joseph has given Kambia reason to believe that what many once thought impossible, is most definitely possible.

Written by Laura Colgan – Corporate Fundraising Officer – Children in Crisis

Robert Benham – Sierra Leone – ‘Inclusion matters’ is more than just a phrase

3 Dec

Having witnessed first-hand the importance of a mother who understands about disability and supports her child, or how a simple aid can enable a child to be a child, I encourage you to look beyond this big title and to consider what ‘Inclusion matters’ really means to children like Nouhou.

Imagine having to move away from your family home, the village you have grown up in, because your community do not accept your child.

For children like Nouhou 'inclusion matters' is more than just a phrase - it is the key to a brighter future

For children like Nouhou ‘inclusion matters’ is more than just a phrase – it is the key to a brighter future

When Aminata gave birth to Nouhou, who has cerebral Palsy, she was told he was ‘evil’ and that she must throw him away. Aminata refused. She chose her son instead.

It is the discrimination and lack of understanding that Aminata and Nouhou faced that the International Day of Disabled Persons is trying to overcome. Based around the theme of ‘inclusion matters’, the day is focussing on the gains derived from integrating people with disabilities into society.

Sitting outside Nouhou and Aminata’s home, listening to her story, I can’t imagine how hard her decision must have been but, how she talks about her son, and the warm look in her eyes as she watches over him, I know that she still believes it was the correct one.

Nouhou with his mum Aminata - his protector.

Nouhou with his mum Aminata – his protector.

She has built a life for her son. Nouhou has grown into an inquisitive 6 year old. With the help of his sister, every day he walks to a nearby primary school and is starting to get the education that will enable him to live an active and inclusive life when he grows up.

Sat next to his mum, wearing his bright green uniform, Nouhou eyes us cautiously, slowly leaning in closer to his protector. Nouhou’s natural suspicion is understandable considering the battles he faces to be included in his world.

His father refuses to acknowledge him as one of his own because of his disability and children at his school provoke and agitate him. Even his community, whilst much more understanding than the one he was born into, do not fully accept him – just the Friday before the family was asked to leave the Mosque.

“It is always a challenge, but I have no choice, I will always support my child.”

During my time in Sierra Leone, the barriers facing children with disabilities were striking in their number. I witnessed an absence of understanding around disability, sometimes unsupportive families, schools and homes that are inaccessible to the disabled – all of which contributed to too many children with disabilities being destined to a life of marginalisation and isolation.

Despite the obstacles that children with disability face to be included in their community, every day I was encouraged by the progress I saw being made by Children in Crisis’ partner organisations such as WESOFOD – a local NGO run by a group of inspiring people with disabilities who advocate for the rights of the disabled and directly support children with disabilities – and by the impact small changes were making to the lives of children like Nouhou.

Sahid's mobility aid enables him to travel to school each day and mix with other children. It enables a child to simply be a child.

Sahid’s mobility aid enables him to travel to school each day and mix with other children. It enables a child to simply be a child.

As we were sat talking to Nouhou, we heard a familiar noise coming up the road, Sahid being accompanied home by his friends.

Sahid, who will be moving into the residential rehabilitation centre being constructed by Children in Crisis & WESOFOD, attends the same school as Nouhou and, unable to walk, gets around on a mobility aid.

This simple device is a great example of little things having a huge impact. It enables Sahid to go to school and to achieve an education. It has allowed him to interact with children his own age and to make friends, making sure that the next generation of children treat those with disabilities equally.

It is estimated that worldwide there are one billion people with disabilities, many of whom live on the periphery of their community, marginalised and discriminated against.

This year’s theme, ‘Inclusion matters’, is a strong phrase for an important International Day. It represents a vision of hope, empowerment and equality.

Having witnessed first-hand the importance of a mother who understands about disability and supports her child, or how a simple aid can enable a child to be a child, I encourage you to look beyond this big title and to consider what ‘Inclusion matters’ really means to children like Nouhou.

For these children ‘inclusion matters’ is more than just a phrase; it is the key to a brighter future, one where they have the opportunity to live life on their terms.

Written by: Robert Benham, Trust Fundraising Assistant, Children in Crisis

Joseph Kamara – Sierra Leone – Ebola, another setback for people with disability.

13 Oct

Even before the outbreak life for people with disability was hard. They are the poorest of the poor.

Joseph Alieu Kamara Founder and Director of Welfare Society for the Disabled (WESOFOD) in Kambia, Sierra Leone talks about how Ebola is especially impacting people with disabilities, making them vulnerable.

We are facing an outbreak of Ebola virus disease which is said to be the most severe reported outbreak since the discovery of the virus in 1976. In order to curb the spread of this deadly virus, the national government has declared a state of public health emergency. This has greatly affected the normal way of life. People are having to cope with all sorts of changes such as no handshakes, no public gatherings, no social meetings, no travel for people in some parts of the country, and no going to hospitals for usual illness such as malaria or diarrhoea for fear of being diagnosed with or catching Ebola. People are constantly washing their hands, either with ordinary soap and water or, if you can afford it, with chlorine.

Ebola is also hurting the country’s economy in no small measure. Many businesses have closed down, national and international markets have been closed and it has become very difficult for business men to travel. In Kambia district specifically, the international market at Bamoi Luma has been closed. This means that for many in Kambia their main source of income and means of survival has been cut off. Prices of commodities, including food, are rising on a daily basis. Life on the whole has become very miserable for people.  I fear that with Kambia district being one of the poorest and most deprived districts in Sierra Leone, an outbreak will be hard to bear.

 

Joseph (back row, second from left) & children at WESOFOD's home for children with Disabilities

Joseph (back row, second from left) & children at WESOFOD’s home for children with Disabilities

 

Though every Sierra Leonean is affected in one way or the other, I strongly believe that Sierra Leoneans with disability are the most affected for the simple fact that they have a disability. To name but a few are the following ways the outbreak has affected them:

Increase in discrimination and neglect. Even before the Ebola outbreak, these are challenges faced by people with disability from both the community and family members. This outbreak has made it worse. A lot of people with disability are dependent on others to support their movement and general welfare, especially those who require mobility aids but do not have them. Now, because people are afraid to come into contact with other people, they are no longer willing to help people with disabilities get around. This means people with disabilities are now having to crawl on the floor to get around, they get wounds from falling and crawling and have to suffer the shame of toilet systems that are not disability-friendly. People with disabilities in turn are afraid of asking for support as they do not know the whether the other person may have come into contact with Ebola. Immediate family members are confused and do not know what to do. Some bear the risk, others abandon their vulnerable family members.

Exclusion from relevant decision making processes in the name of state of emergency. In our experience, people with disability have completely been left out in the fight to curb the spread of this deadly virus. For WESOFOD the reality and hard fact is that our effort and strides to contribute to the development of our communities is still not recognized by stakeholders. Despite our contributions in making schools and health centers in Kambia district inclusive, WESOFOD and our disabled members are still left out of important decisions. Because people with disability and their families were not represented in planning meetings on the Ebola response, the awareness raising programs do not target persons with disability and therefore, do not reach them.  For instance, a street rally on Ebola using Okadas (motor bikes) will only reach those who could run to see them pass. A radio awareness raising program will only reach those who could afford a radio. A sensitization meeting on Ebola held in a court barry or town hall will only benefit those who could climb the steps to the court barry or town hall. A holistic and inclusive approach is what will help us contain the spread of this deadly Ebola virus disease in Kambia District and Sierra Leone as a whole.

 

A sensitization meeting on Ebola held in a court barry or town hall will only benefit those who could climb the steps to the court barry or town hall.

A sensitization meeting on Ebola held in a court barry or town hall will only benefit those who could climb the steps to the court barry or town hall.

 

Closure of schools. There is a very high illiteracy rate amongst persons with disability. A study conducted by WESOFOD and Children in Crisis in 2011 found that 60% of children with disability who were of school going age in Kambia district were not in school. When asked what would help them most, 80% said ‘education’. Since 2011 WESOFOD have been working hard to make education accessible for these children. Now all that has had to stop because schools have been closed. For people with disability, education is the only hope for a brighter future for both the child and parents. We hope children with disabilities are included in any alternative education projects that are planned during this crisis.

High cost of living. Even before the outbreak life for people with disability was hard. They are the poorest of the poor. Most struggle to make a living and a good number are living on the street as either street beggars, or prostitutes or both. They are unskilled and the majority are unemployed because throughout their lives they have been denied education and opportunity. The Ebola crisis has made it worse. For those who were working- their businesses are closed. For those who were living on the street they are even more desperate now the country is feeling economic strain. This has further pushed people with disability into poverty and vulnerability.

 

Children with disabilities miss play and they miss their friends.

Children with disabilities miss play and they miss their friends.

 

The right to play is being removed. Play is the order of the day for children. It is what makes them happy. Children with disability are no exception. Due to the Ebola crisis (fear of contracting the disease), parents and caretakers try to restrain their children from play. Children with disability are confined on their wheelchairs and in homes. Children in the neighborhoods are also restricted from play. They miss play and they miss their friends.

Without targeting those most vulnerable you will not be able to ensure everyone is protected from Ebola, which is a risk to containing the disease. We very much strongly believe that a holistic and an inclusive approach is what is needed to curb the spread of this deadly virus disease in our communities and country as a whole.

 

Children in Crisis  and FAWE have launched an emergency appeal to help our partner communities in Sierra Leone and Liberia protect themselves from the Ebola outbreak.

Please donate today,  your donation can be matched pound for pound by the UK government.

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Koy Thomson – Sierra Leone – Who is not here?

4 Apr

Koy Thomson, CEO of Children in Crisis, recently travelled to Kambia, Sierra Leone. He was there to attend the launch of Children in Crisis’ report  hilighting the reality faced by children with disabilities in Sierra Leone. Below is one of the blogs written by Koy during his visit, published now that he has access to an internet connection. 

‘Who is not in this school is not a question that comes naturally to mind when you see a severely overcrowded classroom’

For some a school packed full of grinning, shrieking kids is enough: job done, move on. Sure, it is an achievement to have a school where none stood before, but two questions always nag us at Children in Crisis: who is not in this school, and; is any learning taking place?

Everywhere in Sierra Leone you see community schools, built and entirely supported by people who by world standards are amongst the poorest. I am more used to reading about ‘free schools’ in the London Evening Standard set up by the chattering classes, with generous support from central government. This is a world away from newspaper stories read on my daily commute.

In Sierra Leone schools are hand-made by locals, and after one or two rainy seasons it clearly shows – or rather, light surely shows through the roof and walls. After building a school, maintaining it seems an effort too far. Sometimes villages are lucky enough to encounter an aid or church organisation who will build their school. This can make children feel that they are really valued and worth something.

Joseph, a friend, said that community schools did not exist before Sierra Leone’s civil war. “Community schools were a response to the total destruction of all school infrastructure, the fleeing of teachers, and the chaos of government. Communities came up with it themselves”. It seems now that communities have stopped investing in their schools, seeing it as a government responsibility, which surely it is. Sadly, they will be waiting for Godot for some time yet.

A typical community school in Sierra Leone.

A typical community school in Sierra Leone.

It is also a huge challenge for community schools to find teachers. It usually means finding the most educated person who is still in the village, or someone you can persuade to come and live in the middle of nowhere for a roof over their heads and next to nothing to live on. These people are often school drops outs who could not find a better option. Community schools were an emergency response by local people. A decade later an emergency response has become normal. Now education itself is the emergency. Some community teachers can barely read and write themselves, and the worst of them would struggle to pass national exams for twelve year olds. Children are way behind the literacy standards expected of them. It is deeply shameful after the struggle and sacrifice to get children through the school door, to have them sitting learning little.

The schools of course are packed. ‘Who is not in this school is not a question that comes naturally to mind when you see a severely overcrowded classroom’. It does come to mind when mid-morning you see young boys working as porters or cleaners in the market, girls hard at domestic chores or caring for babies, and disabled kids crawling in the dirt begging for money by petrol stations and highways.

Sahid, whose Grandmother came to WESOFOD, Children in Crisis' partner organisation in Sierra Leone, asking for help.

Sahid, whose Grandmother came to WESOFOD, Children in Crisis’ partner organisation in Sierra Leone, asking for help.

Poor parents, schooling unfriendly to disability and a belief that children with disabilities are worthless are the reasons behind these out of school kids. To survive as a child with disabilities is an achievement, since many suspect that these children are left to starve after birth. Traditional birth attendants are typically nervous when you ask what happens if a disabled child is born? The belief in witchcraft is strong. I heard one appalling story of a mother who started to have fits after a child was born. The child was blamed for cursing the mother, and slowly in the first few years of life was left to die of malnutrition.

Even if you manage to get children with disabilities into school, and this can mean some poor old granny physically carrying them to and fro between home and school, are they going to be disadvantaged through discrimination? If a disabled child gains nothing from schooling they have no options, save begging, to fall back on. Other children can work on the farm, or work as labourers in the town.

It is the plight of these children  that has led to our report on disability. We had to know more about how many children with disabilities there were in Kambia, what disabilities, what attitudes towards them and what challenges they faced.

Read about the launch of Children in Crisis’ disability report.

Visit Children in Crisis’ website for a full PDF of the report.

Donate to Children in Crisis.

Koy Thomson – Sierra Leone – “We are here”

4 Apr

Koy Thomson, CEO of Children in Crisis, recently travelled to Sierra Leone. He was there to attend the launch of Children in Crisis’ report hilighting the reality faced by disabled children in the country. Below is one of the blogs written by Koy during his visit, published now that he has access to an internet connection. 

“We are here” The report launch.

People see the blindness or wasted legs and not the child. “Who then is really blind? Who then is really crippled” is the famous cry of disability activists.

The Government District Office overlooks the Great Scarcies river. Between the river and the District meeting hall where we were shortly to launch a new study of disability in the villages of Kambia, was an older meeting place: a beautiful Banyan tree, with thick branches that embraced a thatched shelter beneath it. I have been to so many village meetings in Africa, but until recently I had rarely talked of disability.

Disabled people are easy to ignore. In fact many of us are adept at making disabled street beggars completely invisible.

But for those whose job is to aid the most vulnerable they still seem easy to ignore. Disabled children especially take a little extra effort to find. Parents hide them away. They don’t bring them to village meetings, nor take them to school.  Disabled children don’t play with other children.  For most aid agencies they are seen as the concern of specialised services so they are passed over. People see the blindness or wasted legs and not the child. “Who then is really blind? Who then is really crippled” is the famous cry of disability activists.

Most don’t bother to look. “There are none” is a frequent response to the question “how many disabled children do you work with”. Some responses appal. A chief of a global children’s charity told me “It is not cost effective nor value for money to focus on disabled children”. ‘Wow, thanks’ I thought, ‘and they claim to help the most disadvantaged?’

Disability launch

An enthusiastic audience arrives for the launch of the Disability Report.

At Children in Crisis we are determined not to be wilfully ignorant. We had to know more about how many disabled children there were in Kambia, what disabilities, what attitudes towards them and what challenges they faced. We needed help, which brought us to the ‘Village of Hope’ in Kambia and Vision for the Blind in Freetown.

Joseph who runs the organisation the Welfare Society for the Disabled (Wesofod) based at the Village of Hope has travelled widely across Kambia offering support to the parents of disabled children. Loading his crutches and motorbike in narrow dugouts to travel to distant places does not worry him. What he finds there does: children isolated, denied school, discriminated against within the family, and often starved and feared – because they are disabled. Joseph’s dream is to be able to reach out to all disabled people in Kambia and to tell them they are worth something and help them to live with dignity.

Joseph, Founder of WESOFOD.

Joseph, Founder of WESOFOD.

We asked for Joseph’s help in carrying out a survey of people living with disabilities in Kambia. We teamed him up with Vision for the Blind, an organisation run by an inspirational blind leader Jo and his blind colleagues. Two hundred villages – about a fifth of all of Kambia were visited, and families, parents, children, schools, health centres, and government offices were interviewed. Prejudices that disabled children were worthless were immediately challenged by seeing people living with disability as authoritative researchers.

Our goal was to shine a light on a hidden problem and prompt authorities and others to action. The research was funded by a friend of Children in Crisis Stefan Cassar.

On the morning of the Report launch, I was thinking about all of the obstacles that we had overcome to complete the study, including the theft of a computer and a large chunk of the data. I had imagined a small launch event of dignitaries, experts and NGOs. An hour after the scheduled start, no-one had arrived. Joseph grinned “don’t worry Koy, in Africa we say, white men have the watches, we have the time”.

The time arrived and I soon saw that this was going to be an event for people living with disability. It was their issue, it was to be their event. I saw Binti who I had last seen preparing food behind her house, her body propped on a log and shoes on her hands. John and Edward the shoe makers were sitting at the front (and losing a morning of business by attending). I saw Gabriel and Thokola who must have been bunking off from school, and Isa who had taken me to his village the previous evening. Jo, Ali Martin and Sam of Vision for the Blind arrived from Freetown, Jo in his trademark black suit, and Ali Martin in an iridescent brown silken shirt and tie. They looked very cool – a Mowtown Mafia, immediately demanding directions to the canteen. And then all heads turned as a chanting, roaring minibus full of young women from the Village of Hope drove up. A banner announcing the Study Launch was pulled taut across the front. Mariatu, Mafera, Menuatu and others tumbled out “Mr. Koy we are here, we here “.

Binti at report launch - disability - Sierra Leone

Binti

The enthusiastic audience then endured four hours of statements from the stage. But they didn’t seem to mind. This was their event. This the first time they had brought their issue loudly to local government. The first time they heard pledges by the Education Department to compel all newly built schools to be disability friendly. The first time to hear those who made decisions agree with them, that people living with disability were not the problem, but that society turned impairments into disability by putting up barriers to schooling, government services, transport and so on. I was impressed by the progressive understanding of the authorities – they must have read the study.

Ali Martin had amazing authoritative presence and received rapturous applause. “The new Disability Act” he declared “makes health care free for all people living with disability. Buildings must be accessible, and it should start with this Council building. When I come next year, it better had be, or I am returning with a court order!”

Jo, Ali Martin, Council Representatives

Jo, Ali Martin, Council Representatives

I impressed on the audience the need to keep up the pressure “how much gets done depends on the follow up. It is a long road but you have come far. To have a strong membership organisation Wesofod to make your voice louder and provide support to one another is a victory. To have the study which shines a light on discrimination against people living with disability is a victory. To have decision makers listening to you in this hall is a victory. Your struggle is for quality schools and quality services that provide for every individual’s needs no matter what their ability. This is what everyone wants, and you are leading that struggle”.

In my few days working with the growing disability movement in Kambia I learned once again the strength and power of coming together, the hope and energy it creates. I saw the passionate desire of disability leaders not to see others face the suffering that they did. I was humbled by the spirit of mutual support and voluntarism that sent Edward out offering quiet help to child beggars, and Sarah’s mother Binta who had hardly an moment to spare, helping other mothers of disabled children. To them this was not just the launch of a study but an affirmation of their movement and a hope for a bright future.

Follow-up

After everyone had returned home, the organised committee met up and shaped a follow up plan. We agreed that:

  • We need a full official census of disability in Kambia. This must then be used to influence the design of national 2014 census.
  • We need to strengthen Wesofod so that they can continue to build mutual support and the movement for all those living with disability in Kambia, and continue to break barriers to equal services.
  • We need to make the local authorities aware of their duties under the new Disability Act, particularly local politicians and health professionals.
  • We need a media campaign in Kambia to overthrow prejudices and superstitions about disability, and to inform people where they can get help.
  • We need to include the organised voice of the disability movement in the review of the District Development Plan.

You can view a full PDF of the disability report on Children in Crisis’ website

Joseph’s Story “I know what you are saying – I too believe it, but what choice do I have?”

4 Apr

Koy Thomson, CEO of Children in Crisis, recently travelled to Kambia, Sierra Leone. He was there to attend the launch of Children in Crisis’ report  hilighting the reality faced by disabled children in the country. Below is one of the blogs written by Koy during his visit, published now that he has access to an internet connection. 

 “I know it is always best to be loved in your family and community. One day we will have this when people don’t think disability is a curse or witchcraft, and community schools can help every child to learn”

The idea of homes for disabled kids bothers me. I must have reflected it in my hesitance and probing, for Joseph seemed at times to be on the verge of passionate tears. It was only later on a dawn run through the bush, when I reflected on Joseph’s amazing history that things slotted into place.

Joseph has had good and bad fortune but also help in his life. Clearly however, without his ceaseless drive and self-motivation, he would have got nowhere.

Joseph, WESOFOD

Joseph

Joseph’s father travelled halfway across Sierra Leone to leave a five year old Joseph at a Catholic Sister’s Mission in Kambia. He told no-one in the family where he was going, and died a year later. Joseph was brought up with other disabled children, many of whom are now adult members of Wesofod. The Mission founded Joseph’s sense of care, love, education and belonging. He carries it to the present day as he reaches out to help neglected children living with disabilities. Not wanting him to become institutionalised, the Sisters found someone to adopt Joseph. This man was MF Kamara who would later give him his first job in the NGO ABC for Development, and Chair his organisation the Welfare Society for the Disabled. When MF moved, Joseph went back to the Sisters. On January 25th  1995, at the height of the war, rebels attacked and destroyed much of Kambia, killing and abducting  many. Amongst those abducted were 100 secondary and primary school children, and the seven Catholic Sisters. Many of the children were forcibly recruited, brutalised, and raped. After a number of months, sick and emaciated, the sisters were eventually released. The wreck of their home still contains echoes of a serene and beautiful place, which is how Joseph remembers it. Joseph had fled into a village in the bush. When the fighting stopped, ever resourceful, Joseph built up some savings by repairing the shoes of UN soldiers. He used the savings to put himself through teacher training college, taught for one year and then was offered a job by his old friend MF Kamara. But never forgetting his own struggles and how help when he needed it had changed his life, he founded the Welfare Society for the Disabled (Wesofod).

The Catholic Sister's house

The Catholic Sister’s house

In 2008, 25 years after his abandonment, and with a 5 year old’s memory of his parents and his home, he set off to find his family. A greater need drove him on. He had fallen in love and the parents of the girl said that without a father and a mother he could not marry their daughter. “They did not like me and were putting obstacles in my path” said Joseph. After the war thousands were in the position of desperately searching out living relatives. Many would too easily say “yes you are my son” to be linked with someone who was doing well. You had to search and ask without giving too much away. It is a long and touching story of how he found his family, and in the end, it was his memory of a large stone outside his home which as a baby he crawled on that convinced him he had found the right place. His mother was still alive and remembered how he was taken away. Sadly too many further obstacles were placed in the way of his marriage. Was I imagining Joseph’s eyes welling up as he told the story of a family found but a love lost? I certainly saw a deep sadness and yearning. “Even finding love is harder for people living with disability” he murmured.

Reflecting on his remarkable history, I can see that the idea of a ‘home’ for children living with disabilities holds no fears or negative connotations for Joseph. “I know it is always better for a child to be cared for and to grow-up in their own family. But what if there is no school or just a bad school? If a disabled child does not learn anything in school they have nothing to fall back on. Other children can farm or labour for others. A disabled child can only beg. I must help vulnerable disabled children into good schools only. Sometimes the nearest community school is many miles away, across rivers and hills. No-one will carry them there”.

The Village of Hope

The Village of Hope

Joseph’s Village of Hope and his dream of a better place for disabled children to live (where there are no other choices according to him), has no parallels to the horrible institutions encountered in Eastern Europe by Children in Crisis in the mid 90s. These were places of terror and abandonment, run by resentful staff with no sympathy for disabled people nor children without parental care.

In Joseph’s place, disabled people look after one another. But they are not isolated from society. The children are integrated into local schools and given extra support if they need it. Young people and adults are given vocational training and they go out and earn a living. The workshop is requiring such a reputation that people are starting to come to them.

Joseph has long discussions with teachers and head teachers about the needs of disabled children. The Head Teacher of the SLIF secondary school in Kambia (which Abdullah attends) told me “Joseph has been so helpful to me. I make sure that all children with a disability have friends to help them. I talk to the whole school about not bullying one another. Joseph helped us to build access ramps and to make toilets accessible. We know how to give extra help to all children that need it, not just disabled children. I would have no hesitation taking any child into my school, no matter what their disability.  I have even made one of the girls living with disability the class representative to the principal, not because she is disabled, but because she is so good at bringing all the children to order and organising them”.

Children supported by WESOFOD

Children supported by WESOFOD

Sitting outside a house that Joseph had rented from the community and which acted as home for maybe a dozen children, I still wanted to know what children thought about being away from their families. I knew if Joseph was translating, and if children thought I might bring money to improve their home, that I was not going to get a straight answer, but I asked anyway “do you miss your families”. Actually I got no answers from these children who has been variously abandoned, locked up inside all day, kept from school and always fed last. We can make assumptions, we can draw inferences, but this is an issue we need to understand much better.

Joseph saw my doubts and anxieties “I know it is always best to be loved in your family and community. One day we will have this when people don’t think disability is a curse or witchcraft, and community schools can help every child to learn. I talk through all options when I can find the parents, but in this country there is so little choice”.

“You are making a big commitment Joseph” I said “the home that you want to build is only structure. You are making a commitment to care for and educate the children throughout their school days, You are going to need more than hope”.

WESOFOD are one of Children in Crisis’ local partner organisations in Sierra Leone. Read more about our work.